Last week I was supposed to go to this "thing" out in Gettysburg, for two days. It was part conference/part work session, a statewide thing run by our state Bureau of Special Ed. Since PA had the PARC decree 3 years before IDEA existed, we had "IEPs" and special ed, and we have these parent-led groups called Local Task Forces.
I've written about them on my site before, because they're a fantastic idea, but they have this clunky name that is unappealing. Anyway, I am chairing the one for my
How's everyone doing? Whether this past week (and next) was vacation, time off, ESY or just business as usual, I hope you were able to find time for yourself.
For those of you who have been around me for a while, maybe you remember back in the winter when it was first announced that the US Dept of Ed was being dismantled. First, it was shock. Then, within about 24 hours or so, I was on social media and email, saying "oh hell no, fucking bring it!"
I still stand by those statements, bec
Today was a really odd day. I mean--spent the day watching high school basketball which is pretty much what I do every weekend.
But coming home, traffic was a hot mess. And, the whole FIFA thing was letting out in south Philly....and we got caught in this mele and traffic stop on 95 right by the airport. As we're sitting there stopped (yes, stopped on I-95 so the Juventus busses could have the right of way with a police escort), the guy behind me threw a can at the car next to him! (which w
Like a lot of people, yes—I’ve tested AI to see if it could lighten my workload.
Every time, I’ve ended up disappointed. In the 15 years since I started, my work has shifted from “just a blog” to a full-scale online business that I mostly run alone. The pressure is real, and shortcuts are tempting.
I tried using AI for blog posts... it gave wrong info, clunky phrasing, not my voice, and hours of editing. No time saved.
I tried it for emails and social posts, fine at first, unt
So I was supposed to go on a girls’ weekend this month with some college friends. You know — shopping, eating, flannel pajama pants in a rented house.
And then someone in the group chat said, “Can we not talk about politics this weekend?” And the others chimed in with, “Yes, please!”
And listen, I get it. I talk about politics a lot. It’s who I am. It’s literally my life’s work. Disability rights are politics. Public education is politics. Your kid’s IEP? Tied to federal law..... which
I have this neighbor who has become one of my closest friends. Years ago, we both decided we needed to walk more, so we carved out time...even with six kids between us, two IEPs, and busy work lives. Now we manage to get in 4–5 walks a week. It’s one of the best things I do for myself.
This morning I got to our meeting spot first. While waiting, I heard an odd sound and, being the bird nerd that I am, looked up. There was a pileated woodpecker hammering away. If you’ve never seen one, they’
Normally I send my Sunday email out later...and had it scheduled as such. But, that can wait until next week, I couldn't not send this out today.
Remember when some folks said, "It’ll be so much better now"?
Yeah. About that…
In case you haven’t heard, OSEP (Office of Special Education Programs, the federal office that oversees special education) has basically been wiped off the map. It’s part of a much bigger plan to gut the Department of Education. All the employees were fired F
Facebook reminded me that ten years ago this week, Kevin had his first seizure. With his genetic condition, we knew it was a strong possibility, but woke up grateful each day that it hadn't happened. Yet.
It was summer, just like now. We were headed into what should’ve been a lazy, sunny week, but instead, our world cracked open and never quite sealed back the same way.
I can tell you where I was standing. I can still hear the silence that follows a seizure—that eerie quiet where time
So...Norm from Cheers died. I know, I know—dating myself a bit. But I loved that show. Still do. Hulu thinks I need a rewatch and honestly? Some of the episodes have aged like milk. (Yikes.)
There was one that stuck with me, though. Sam signs Diane up for a “barmaid beauty” contest. She’s horrified—because, duh, Diane. But she goes along with it, and by the end, she realizes that winning gives her a bigger platform to speak out about objectifying women.
Anyway, it hit me: I’m in my own
Hey.
I almost didn’t write tonight’s email.
I’m tired. You’re tired. And honestly, it’s been one of those weeks where everything feels just slightly off. The kind where you open your inbox, think “I should deal with that,” and then… don’t.
But that’s exactly why I write these. Because if I’m feeling it, I know some of you are too.
I was supposed to speak at an event in Chester County yesterday. They asked me Thursday, while I was elbow-deep in a cart at BJ’s, hunting for pull
For obvious reasons, I follow a lot of education, disability and special ed related stuff on social media.
This one post still has me thinking about it, and I saw it like 2 weeks ago. I'm not personally criticizing anyone--we're all entitled to our opinions. And, our world view is our world view, based on what we've experienced.
But clearly my advocacy journey has been quite different than hers.
I offer advocate training. On Thursdays during the school year, we Zoom at 2:00. Somet
Kevin had an appointment in center city recently. Yes, pushing an adult in a wheelchair through Philly when my car said...(checks notes)...104 degrees. Whew!
Many of his doctors teach and do research. And, he asked us to participate in a study they're doing about disaabled kids who have to transition from pediatric to adult providers. I said yes, of course. Because this? This is exactly where we are. And it’s hard.
On the drive home (in traffic because the city was teeming with tourist
