I have two daughters, ages 11 (dyslexia and ADHD) and 7 (mild dyslexia; attention issues but not considered ADHD).
My eldest has an IEP (obtained in late 3rd- Spring 2023/early 4th grade Fall 2023; private diagnosis of dyslexia and ADHD was done outside of school by Oct 2023-Jan 2024 to have a specific name for her struggles). When I switched from the choice school she was attending at the time of her initial IEP (who seemed to have a good reputation on paper), back to our district school, she was reading approximately 3-4 grades below level.
I switched b/c the school team was dragging their feet about helping her (Just read to her/Response to Intervention purgatory for a couple years before finally evaluating her etc., then , using weak IEP goals and interventions, while simultaneously telling me how talented and skilled they were, and 'that she was being educated by the best...she's smart, maybe she'll catch up someday...etc.'
I also noticed that my youngest (who was in kindergarten at the original school) was starting to struggle a bit with reading as well, and didn't want to face a similar process with her at the choice school.
I enlisted the help of a mom who was getting training in Orton Gillingham the summer of the school switch (2024), then placed her in an online private tutoring program, Dyslexia On Demand-CALT tutors; Take Flight Program, by Fall 2024. The private interventions made the most difference. I started seeing progress with her reading improving by the Fall of 2024, even with just the mom helping her in the summer. She's also done really well with the Dyslexia on Demand tutors, and has improved by several grade levels in a year with them (reading at around a 4th grade level; up from K-1st or so when we left the previous school).
The original school district (transfer school area), has been slightly more helpful for my eldest ( took temporary services from pro-bono lawyer and advocate), but got her IEP goals straightened out somewhat). I still wrestle with the schools a bit with appropriate programs, intensity, fidelity, etc. but it's a little better than the previous school. Eldest is currently in middle school in Jr Beta Club and orchestra etc., along with her core classes.
I have struggled a bit more, however with advocating for my youngest. She is currently in the 2nd grade and I can't get an IEP for her. I had an advocate last year at transfer school (advocate no longer available this year, and I'm back to being gaslight more again this year).
In May 2024 before we transferred, I had a CALT do a dyslexia screening which indicated struggle. School evaluated her, and explained away signs of struggle on her testing, and said no IEP needed (Fall/Winter 2024). Had an IEE via the district, which also found struggle, and she received a diagnosis of mild dyslexia and attention issues (Spring of 2025; school didn't meet with me before end of year to discuss it).
Fall 2025: School data and evaluations indicate poor oral reading fluency, as well, but the school team said, that because her IQ was above average, high processing speed and grades were good so far, no IEP needed (despite IEE results as well as standardized testing indicating reading struggle).
I feel that time is of the essence. I'll do what I can to keep trying to get her an IEP, but I'm also looking into homeschooling. I am getting weary of wrestling to meet my girls' basic needs, being gaslit, delayed, denied, and wasting more precious time for them. I also want to customize their learning experience a bit more, improve their self esteem etc. (They often make comments about not being smart enough, and my eldest also sees a psychologist weekly for support after her experiences at the previous school).
Question:
What happens to the IEP when one goes the homeschool route?
Can my eldest still access the school (name) Club and orchestra if in homeschool? Or would we need to seek community resources for this?
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Lisa Lightner
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